Living with Trisomy 13 in Uruguay



Living with Trisomy 13 in Uruguay

Trisomy 13 has been said to be incompatible with life, but Thiago is defying the odds. His home country of Uruguay has few children with trisomy 13 and no specialists to treat his rare condition, so he must travel abroad for specialized care.

Thiago's medical journey, from Uruguay to Utah:

Before Thiago was born, his parents were told he would not live. Rather than terminate the pregnancy, they left the matter in God's hands. Today, Thiago is one of the less than 10% of kids with his condition that make it past 1 year of life. Thiago has the added challenge of living in Uruguay where there are few resources for treating children with his condition. He has traveled several times to Chile to receive physical therapy, but now needs to travel to Salt Lake City, Utah to see doctors and other professionals that specialize in caring for children with Trisomy 13. Those that have helped and cared for Thiago have come to find that he has a way of giving back more than he receives.

Would you like to help Thiago? You can probably imagine that it is very expensive to travel to a foreign country to see specialists that aren't covered under your insurance. We are looking for your help to make sure Thiago can make it there, and make the most of his trip. Stay tuned here and on Thiago's Facebook page for fundraising offers, updates and ways to help, or simply donate now, by clicking the button below. All donations are deposited to the Mountain American Credit Union account #966 5337, which has set up for Thiago's medical costs:

















Monday, August 26, 2013

On my way to Utah! - Airport Welcome

Well, it's official, we have begun our long trip to Utah, and what a way to start. 

It was incredible to see how much the American Airlines employees prepared for Thiago to make his trip special. They decorated an exclusive check-in that was set up just for him. All along the way to the plane there were decorations, and at the gate, there was a balloon arch. Inside the plane were more surprises like a bed with his name on the pillows and blanket, along with balloons and other decorations. 

They also gave Thiago a special card signed by the pilots and the other employees too. It was so moving to to see all the special things they did, and how happy and excited everyone was as they interacted with Thiago. 

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Es oficial! Comenzamos el viaje largo a Utah, y que mejor manera de hacerlo. 

INCREIBLE todo lo que han preparado y como se interesaron por Thiago los empleados de American Airlines. Prepararon un Check-in exclusivo para Thiago, hicieron carteles con su nombre, globos, entre otras cosas. Cuando llegaron al Gate de acceso al Avion hicieron una arcada de globos y todo el camino hacia el avion estaba decorado, cuando entraron al Avion tambien tenian muchas sorpresas... le hicieron una manta/frasada/colcha, que tiene el nombre de el, tambien les hicieron alguna almohadones con su nombre, globos y muchas otras cosas dentro del avion. 

Tambien, los pilotos le regalaron como una carta especial con unas palabras para Thiago y la firma de todos los empleados de la compañia. De verdad que fue emocionante llegar al aeropuerto y ver todo eso, lo contentos, animados y entusiasmados que estaban esperando a Thiago.














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