Living with Trisomy 13 in Uruguay

Living with Trisomy 13 in Uruguay

Trisomy 13 has been said to be incompatible with life, but Thiago is defying the odds. His home country of Uruguay has few children with trisomy 13 and no specialists to treat his rare condition, so he must travel abroad for specialized care.

Thiago's medical journey, from Uruguay to Utah:

Before Thiago was born, his parents were told he would not live. Rather than terminate the pregnancy, they left the matter in God's hands. Today, Thiago is one of the less than 10% of kids with his condition that make it past 1 year of life. Thiago has the added challenge of living in Uruguay where there are few resources for treating children with his condition. He has traveled several times to Chile to receive physical therapy, but now needs to travel to Salt Lake City, Utah to see doctors and other professionals that specialize in caring for children with Trisomy 13. Those that have helped and cared for Thiago have come to find that he has a way of giving back more than he receives.

Would you like to help Thiago? You can probably imagine that it is very expensive to travel to a foreign country to see specialists that aren't covered under your insurance. We are looking for your help to make sure Thiago can make it there, and make the most of his trip. Stay tuned here and on Thiago's Facebook page for fundraising offers, updates and ways to help, or simply donate now, by clicking the button below. All donations are deposited to the Mountain American Credit Union account #966 5337, which has set up for Thiago's medical costs:

Saturday, June 1, 2013

Decision to go to Salt Lake City

Thiago has made huge advances, but his condition and risk of dying still remain. He continues to surprise us and the doctors that treat him, and that keeps us going. In Uruguay, we know of only 2 trisomy 13 cases and no one trained in treating his rare condition. Thiago's next step is to visit specialists in Salt Lake City, Utah. We are nervous and excited all at the same time for Thiago. Our current plan is to arrive in Salt Lake at the end of August, and stay for a month to see as many specialists and therapists as we can. We have so much to do to get ready!

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